What is the theme of the 3rd J-PEP seminar?

The theme is 'Social Participation of People with Rare Diseases and the Possibility of New Workstyles: RD Worker - From the Practice of Policy Advocacy'.

Are there any conditions for attending the seminar?

Yes, you need to register as a member of the 'Everyone's Patient and Stakeholder Participation Platform (J-PEP)' to attend.

The speaker is Joji Shigemitsu, who is the President of NPO Both Worlds, a Fellow at the Tama University Graduate School of Medical and Nursing Solutions Research Institute, and a Researcher at St. Marianna University School of Medicine.

When and how will the seminar be held?

The seminar will be held online via Zoom Webinar on July 22, 2026, from 18:00 to 19:00.

What does RD Worker mean?

RD Worker is short for Rare Disease Worker. It refers to a workstyle that encompasses not only people with designated rare diseases but also those with chronic conditions, aiming to broaden their employment and social participation options.

[July 22 Online Event/Free] 3rd J-PEP Seminar: Social Participation of Patients with Rare Diseases and New Ways of Working - Potential of 'RD Workers'

Published Jun 9, 2026 9:00 PM ・ Updated Jun 14, 2026 4:41 AM ・ 2 min read ・ Source: PR TIMES

HGPI will host the 3rd J-PEP seminar on July 22, 2026, featuring Takayuki Shigemitsu, who will discuss the 'RD Worker' model and policy advocacy for patients with rare diseases.

The Health and Global Policy Institute (HGPI) is hosting a seminar for members of the 'Japan’s Patient Expert Platform' (J-PEP). J-PEP was launched on December 1, 2024, as a platform to support the sustainable and effective participation of diverse patients in policy-making.

The 3rd seminar will feature Mr. Takayuki Shigemitsu, Chairman of NPO Ryoiku World. Mr. Shigemitsu advocates for 'RD Workers'—a term referring to individuals with rare diseases who want to work—and strives to broaden employment and social participation options. 'RD Worker' stands for 'Rare Disease Worker' and encompasses people with intractable chronic illnesses.

The seminar will cover practical examples of policy advocacy in the field of rare diseases and employment, including the creation of 'White Papers on Social Participation of Rare Disease Patients,' initiatives with local governments to expand disability employment coverage, and the realization of flexible work arrangements within the civil service law framework.

[Event Details] - Date/Time: Wednesday, July 22, 2026, 18:00-19:00 - Format: Online (Zoom Webinar) - Fee: Free - Capacity: 500 people - Target: J-PEP registered members only

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Source: PR TIMES
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[July 22 Online Event/Free] 3rd J-PEP Seminar: Social Participation of Patients with Rare Diseases and New Ways of Working - Potential of 'RD Workers'

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